The University of Michigan Fragile X Assessment and Treatment Clinic



Fragile X University of MichiganOn Saturday, June 23rd, 2012, the University of Michigan Fragile X Assessment and Treatment Clinic celebrated it’s opening.  Families of Fragile X patients and Fragile X  Friendly Professionals were invited to attend. The University of Michigan clinic is part of the National Fragile X Clinical & Research Consortium.  Currently there are approximately 25 FXCRC clinics throughout the United States.

The idea for a Fragile X Clinic began with Lori Edelson, LMSW, at Birmingham Maple Clinic in 2010 when she invited a group of specialists from  southeast Michigan to begin meeting with the mission of developing a clinic where Fragile X patients and their families could go for assessment, diagnosis and treatment.  From those meetings, it was decided that it would be best to establish the clinic at a major research institution, and thus the University of Michigan in Ann Arbor was selected.

Fragile X Syndrome is a genetic syndrome that is the most common known single-gene cause of autism and the most common inherited cause of mental retardation among boys.  The spectrum of disability ranges from mild to severe and often accompanies specific physical and behavioral characteristics. The diagnosis is made through genetic testing.  There is currently no drug treatment that is specifically designed to treat FXS, however medications are used to treat the common associated symptoms, including  ADHD, anxiety, obsessive compulsive symptoms and aggression.

Fragile X Assessment Lori EdelsonIndividuals with Fragile X syndrome usually benefit from speech therapy, occupational therapy, and individualized educational and behavioral programs.

There are other Fragile X related disorders that affect carriers of the FX gene as well as adults who have the Fragile X Syndrome.

For more information, contact the University of Michigan Fragile X Assessment and Treatment Clinic at 734-232-6750 or 734-763-3427, or Lori Edelson at Birmingham Maple Clinic at 248-646-6659.

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